Allicia Allicia, Made Dharmawan Rama Adhyatma


Down Syndrome is a disorder caused by chromosome abnormalities that are associated with mental retardation, characteristic facial appearance, and poor muscle. The disorder makes a child diagnosed with this disorder has a typical characteristic such as lower intellectual capability, social capability, and healthiness than the other child with normal development. The presence of a child with Down Syndrome makes the majority of mothers experience deep sadness, stress, and depression. That's why the capability to respond and accept the presence of the child positively is needed. Resilience is an individual capability to face, deal, and respond to difficulties or challenges in life in a healthy and productive manner. This study using qualitative research method with phenomenological approach. Informant in this study were three mothers which having a child with Down Syndrome that is achieved in sport. The informant was chosen with a purposive sampling method. This study using an inductive thematic analysis data analysis technique. The results of this study indicate that mothers who have Down Syndrome child’s see her child’s is a gifts, have a sense of pride in the child’s achievements, social support from those around her makes her have an optimism to develop children’s potential, and an effort to develop children’s interests and talents.

Save to Mendeley

Full Text:



Bishop SL, Richler J, Cain AC, Lord C. (2006). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation, 112:450–461.

Carr, J. H. (1995). Down Syndrome: Children Growing Up. New York: Cambridge University.

Cohen, W. I., Nadel, L., & MadN, M. E. (2002). Down Syndrome: Visions for the 21st Century. New York: Wiley-Liss, Inc.

Creswell, J. W. (2014). Research design: qualitative, quantitative, and mixed methods approaches (4th edition). USA: SAGE Publications, Inc.

Cunningham, C. (2006). Down Syndrome An Introduction for Parents and Carers. London: Souvenir Press.

Danielson, C. B., Hamell-Bissell, D., & Winstead-Fry. P. (1993). Families, health & illness: Perspectives on coping and intervention. St. Louis: Mosby.

Diananto, W. (2011). Soraya Haque, Terkenang Bayi Down Syndrome yang Dibuang ke Tempat Sampah. [Artikel Online] diakses pada 21 Maret 2019 dari

Dykens, E.M. (2007). Psychiatric and behavioral disorders in persons with Down Syndrome. Ment Retard Dev Disabil Res Rev 13, 272–278.

Durkin, K. (1995). Developmental social psychology: From infancy to old age. Oxford, UK: Blackwell Publishers Ltd.

Ferreira-Vasques, A. T., & Lamonica, D. A. C. (2015). Motor, linguistic, personal and social aspects of children with Down Syndrome. Journal of Applied Oral Science, 23(4), 424–430. doi:10.1590/1678-775720150102.

Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou, R. J.-A., & Hong, J. (2004). The Effect of Quality of the Relationship Between Mothers and Adult Children With Schizophrenia, Autism, or Down Syndrome on Maternal Well-Being: The Mediating Role of Optimism. American Journal of Orthopsychiatry, 74(1), 14-25.

Grotberg, E. (1995). A Guide to Promoting Resilience in Children: Strengthening the Human Spirit. Netherland: Bernard Van Leer Foundation.

Gutiérrez, M., Caus, N., & Ruiz, L. M. (2011). The influence of parents on achievement orientation and motivation for sport of adolescent athletes with and without disabilities. Journal of Leisure Research, 43, 355–382.

Johnson, Ben. (2015, Februari 6). Wife tells husband to choose between giving up baby with Down Syndrome, or divorce: he chose the baby. Diakses dari news/father-chooses-son-with-down-syndrome-over-his-wifes-divorce-ultimatum.

Lam, L. & Mackenzie, A. E. (2002). Coping with a child with down syndrome: The experiences of mother in Hong Kong. Qualitative Health Research, 12 (2): 223-237.

Malak, R., Kostiukow, A., Krawczyk-Wasielewska, A., Mojs, E., & Samborski, W. (2015). Delays in Motor Development in Children with Down Syndrome. Medical Science Monitor, 21, 1904–1910. doi:10.12659/msm.893377

Mangunsong, F. (2009). Psikologi dan Pendidikan Anak Berkebutuhan Khusus. Depok: Lembaga Pengembngan Sarana Pengukuran dan Pendidikan Psikologi (LPSP3).

Martin, J. J. (2006). Psychological aspects of youth disability sport. Adapted Physical Activity Quarterly, 23, 65-77.

Nunes, M. D. R., & Dupas, G. (2011). Independence of children with Down Syndrome: The experiences of families. Revista Latino-Americana de Enfermagem, 19(4), 985-993.

Pahlevi, R. (2016). “Down Syndrome” Bukan Akhir Dunia. [Artikel Online] diakses pada 21 Maret 2019 dari

Parker, J. N & Parker, P. M. (2007). Down Syndrome: A Bibliography And Dictionary for Physicians, Patients, and Genome Researchers. USA: ICON Group International.

Poerwandari, E.K. (2007). Pendekatan Kualitatif untuk Penelitian Perilaku Manusia. Jakarta: LPSP3 Fakultas Psikologi Universitas Indonesia.

Prestasi Internasional. Diambil pada tanggal 18 April 2019 dari

Reivich, K. & Shatte, A. (2002). The resilience factor: 7 Essential skills for overcoming life’s inevitable obstacles. USA: Three Rivers Press

Roizen N. J, & Patterson, D. (2003). Downs syndrome. Lancet, 361: 1281–1289.

Rondal, A. J., & Perera, J. (2006). Down Syndrome: Neurobehavioural Specificity. Chicester: Wiley.

Sahin, N. H., & Gungor, I. (2008). Congenital anomalies: Parent’s anxiety and women’s concerns before perinatal testing and women’s opinions towards the risk factors. Journal of Clinical Nursing, 17(6), 827-836.

Sari, H.,Y, Baser, G., Turan, J.,M. (2006). Experiences of mothers of children with Down Syndrome. Paediatr Nur, 18(4):29-32

Shields, N & Barr, M. (2011). Identifying the barriers and facilitators to participation in physical activity for children with Down Syndrome. Journal of Intellectual Disability Research, 55 (2), 1020-1033.

Skotko, B.G., Levine, S.P., & Goldstein, R. (2011). Having a son or daughter with Down Syndrome: Perspectives from mothers and fathers. Am J Med Genet Part A 155, 2335–2347.

Tamar, H., Kelly, H., & James, R. (2003). Barriers and Supports for Exercise Participation Among Adults with Down Syndrome, Journal of Gerontological Social Work, 38:1-2, 161-178, DOI: 10.1300/J083v38n01_03.

Van, Riper M. (2007). Families of Children with Down Syndrome: Responding to “A Change in Plans” with Resilience. Journal of Pedriatic Nursing, 22 (2), 124-125.